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G.A.I.N. - Glutaric Aciduria type I - International Network

S. Kölker, G.F. Hoffmann
Funding: Kindness-for-Kids-Foundation

Opens external link in new windowE-IMD  European registry and network for Intoxication type Metabolic Diseases

S Kölker (Koordinator)
12 associated partners + 15 collaborating partners

Funding: European Commission (via DG Sanco)

Long-term follow-up of patients with congenital urea cycle disorders (Study centre of "Longitudinal study of urea cycle disorders" of the American UCDC-Consortiums)

G.F. Hoffmann, P. Burgard, S. Kölker
Funding: Dietmar-Hopp-Stiftung, Walldorf

KAMPER (Kuvan Adult Maternal Pediatric European Registry)

M. Lindner, M. Morath, G.F. Hoffmann
Funding: Merck Serono

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Address

Metabolic Center Heidelberg
Metabolic Laboratory
Im Neuenheimer Feld 669
D-69120 Heidelberg

Metabolic Laboratory:
Phone: +49 (0) 6221 56-8276
Fax: +49 (0) 6221 56-5565
 
Emergency Phone:
+49 (0) 6221 56-4002

 
Newborn Screening:
Phone +49 (0) 6221 56-8278
 
Patient care:
Phone: +49 (0) 6221 56-4002

Emergency contacts