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Translational Lung Research Center Heidelberg




The Registry for Exploring Clinical and Epidemiological Characteristics of Interstitial Lung Diseases (EXCITING-ILD; NCT02645968) is a multicentre, noninterventional, prospective, and observational registry for interstitial lung diseases (ILD) that collects comprehensive and validated data from healthcare institutions on the incidence, prevalence, characteristics, management, and outcomes regarding all ILD presentations in the real-world setting including demographic data, disease-related data such as ILD subtype, treatments, diagnostic procedures (e.g., HRCT, surgical lung biopsy), risk factors (e.g., familial ILD), significant comorbidities, ILD managements, and disease outcomes as well as healthcare resource consumption.


In addition to supporting cutting edge research into ILD, the new ILD register aims to fill current gaps in knowledge about epidemiology, health economics and existing clinical practices for ILD patients. The registry data will further improve our knowledge of ILD subtypes in Germany and most importantly contribute to a much improved clinical guideline and prognosis of ILD patients in the long term. The DZL-initiated registry is supported by a number of German Pulmonary Research Associations (BdP, DGP, WATL, ILF, Helmholtz Zentrum), Hospital Pulmonary and Critical Care Departments, as well as an ILD patient support group.


Prinicipal Investigator: Prof. Dr. med. Michael Kreuter, Center for Interstitial and Rare Lung Diseases, Department of Pneumology and Respiratory Medicine, Thoraxklinik, University Hospital Heidelberg


Recruiting Centers: NCT02645968





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