Welcome Information for… Patients and family…

Dear Parents and Families, dear Patients:
On this page you will find all you need to know during your stay at our hospital, and many links and addresses with additional information.

 

Please note some links lead to german webpages!

 

Parent accomodation Opens external link in new windowElternwohnen

 

Sibling daycare in the Kinderplanet facility Opens external link in new windowKinderplanet

 

Borrowing books and games from the library  Opens external link in new windowBibliothek

 

Onko - kids: Chatting with other children and adolescents Opens external link in new windowOnko - kids

 

Online stroll for kids through Medicine Town Opens external link in new windowMedizinstadt

 

Courage is good for you says the Pediatric Cancer Foundation and its Pirates of the Forest Opens external link in new windowWaldpiraten

 

Courage to donate to COURAGE Opens external link in new windowCOURAGE

 

The Hospital School is available to all children and adolescents in the Medical Center Opens external link in new windowKlinikschule

 

Child Protection Team Opens external link in new windowKinderschutzteam 

 

 

See below for more useful information and links:

The information portal on cancer and blood disorders in children and adolescents kinderkrebsinfo.de  provides information in many different languages:
Opens external link in new windowkinderkrebsinfo.de

 

German Society of Pediatrics and Adolescent Medicine:
Deutsche Gesellschaft für Kinder und Jugendmedizin

 

The information portal Kinderblutkrankeiten.de offers the latest information on pediatric blood disorders for patients and their families:
Kinderblutkrankeiten.de

 

Information and instruction on managing asthma for patients and their families:
www.asthmaschulung.de
Geschäftsstelle der AG Asthmaschulung e.V.
Iburger Straße 187
49082 Osnabrück
Tel.: 0541 5602-0 oder 0541 5602-213
Fax: 0541 5829985
E-Mail: HesseAKOS(at)uminfo.de 

 

Information portal for patients with respiratory or lung disease.
The "Termine" tab offers a good overview of coming events:
www.atemwegsliga.de
Deutsche Atemwegsliga
Burgstraße 12
33175 Bad Lippspringe
Tel. 05252/ 93 36 15
Fax 05252/ 93 36 16

 

Patient and consumer organization for patients with allergies, asthma/COPD and neurodermatitis:
www.daab.de
Deutscher Allergie- und Asthmabund e. V.
Fliethstr. 114
41061 Mönchengladbach
Tel. 02161/ 81 49 40
Fax 02161/ 81 49 430

 

Information portal on asthma and COPD. Comprehensive information on asthma:
www.luft-zum-leben.de

 

Nonprofit organization of patients with respiratory and lung disease, doctors and psychologists:
www.patientenliga-atemwegserkrankungen.de
Patientenliga Atemwegserkrankungen e.V.
Berliner Straße 84
55276 Dienheim
Tel. 06133/ 92 45 57

 

Information and help portal for children with allergies:
www.aak.de
Arbeitsgemeinschaft Allergiekrankes Kind e.V.
Nassaustraße 32
35745 Herborn
Tel. 02772/ 92 87 0
Fax 02772/ 92 87 48

 

Support group for allergy sufferers:
Allergiker Selbsthilfe e.V.
Hermann-Löns-Weg 11a
35745 Herborn
Tel. 06195/ 91 06 74
Fax 06195/ 91 06 74

 

German allergy and asthma aid organization:
www.dhaa-hamburg.de
Deutsche Hilfsorganisation Allergie und Asthma (DHAA e.V.)
Bundesgeschäftsstelle
Bonusstraße 32 21079
Hamburg Tel. 040/ 76 31 322

 

Annual information campaign for lung disease awareness:
www.lungentag.de
Deutscher Lungentag
Burgstraße 12
33175 Bad Lippspringe
Tel. 05252/ 95 45 05
Fax 05252/ 95 45 06

 

German Cystic Fibrosis Association:
www.muko.info
Mukoviszidose e.V. – Bundesverband Selbsthilfe bei Cystischer Fibrose (CF)
In den Dauen 6
53117 Bonn
Telefon: 0228/9 87 80-0
Fax: 0228/9 87 80-77 
E-Mail: info(at)muko.info

 

Website for CF patients by a CF patient:
www.mukoland.de

 

German CF network:
www.fev1.de
CF-Netzwerk Deutschland e.V

 

 

Opens external link in new windowNorth American Cystic Fibrosis Foundation (CFF)