Use Case CORD

Collaboration on Rare Diseases

Project Management: Dr. Fleur Fritz-Kebede

Project partners:

• Prof. Georg F. Hoffmann, Center for Rare Diseases, UKHD
• Dr. Josef Schepers, Berlin Institute of Health (overall project management)
• MII Consortia

Sponsor: BMBF

Brief description: CORD is a collaborative project involving the majority of German university hospitals in the four consortia of the Medical Informatics Initiative (MII). The aim of the project is to improve the documentation of rare diseases in the university hospitals and to make the acquired data jointly usable in accordance with data protection regulations. This is intended to support care and research in the field of rare diseases. https://www.medizininformatik-initiative.de/de/CORD

Staff of the Institute: Team MeDIC, Niclas Hagen